Support Groups
Ataxia
Dystonia
Essential Tremor
Movement Disorders
Parkinson's Disease
Ataxia Support
National Ataxia Foundation
2600 Fernbrook Lane, Suite 119
Minneapolis, MN 55447-4752
763.553.0020
http://www.ataxia.org
International Network of Ataxia Friends (INTERNAF)
http://www.internaf.org
Dystonia Support
Dystonia Medical Research Foundation
Founded to advance research for more treatments and ultimately a cure; to promote awareness and education; and to support the needs and well being of affected individuals and families coping with dystonia.
http://www.dystonia-foundation.org/
The Bachmann-Strauss Dystonia & Parkinson Foundation
The Bachmann-Strauss Dystonia & Parkinson Foundation was established in 1995 to find better treatments and cures for the movement disorders dystonia and Parkinson's disease and to provide medical and patient information.
http://www.dystonia-parkinsons.org
Essential Tremor Support
International Tremor Foundation
The International Essential Tremor Foundation (IETF) was created to provide information, services and support to individuals and families affected by essential tremor (ET).
http://www.essentialtremor.org/
Movement Disorders Support
We Move
The Internet's most comprehensive resource for movement disorder information and education.
http://www.wemove.org/
The Movement Disorder Society
An international professional society of clinicians, scientists, and other healthcare professionals, who are interested in Parkinson's disease, related neurodegenerative and neurodevelopmental disorders, hyperkinetic Movement Disorders, and abnormalities in muscle tone and motor control.
http://www.movementdisorders.org/
Parkinson's Disease Support
The Johns Hopkins University Parkinson's Disease Community Outreach & Education Center
The Center is dedicated to addressing the specific needs of individuals with Parkinson's disease and related disorders as well as their families through various programs, classes, and services:
•Parkinson's Disease 101 and 201: Two educational classes for patients and caregivers that are moderated by Parkinson's Disease specialists. Classes are for newly diagnosed and advanced patients.
•Educational Symposium: An all day conference for persons with Parkinson's disease and their families offered every year in coordination with the Parkinson's Foundation of the National Capital area.
•Parkinson Digest: A quarterly newsletter about Parkinson's Disease and other movement disorders.
•Monthly support / educational groups for persons with Parkinson's disease
•Quarterly Young Onset Parkinson's Group
•Quarterly Dystonia Support Group
•Affiliation with National Ataxia Foundation Group
•Caregiver support group
•Telephonic information and referral to a variety of services, including rehabilitation specialists and Parkinson exercise programs
•Individual meetings to discuss management and resources available
•Information on the latest research opportunities
•Assistance obtaining medications through pharmacy assistance
•Resource library of books and videos
•Free literature from the National Parkinson Foundation
•Recommendation of adaptive equipment
•Speakers Bureau
The National Parkinson Foundation, Inc.
This organization supports research; conducts clinical trials; and provides physical, occupational, speech and neuropsychological therapies. Learn about Parkinson's disease-related news and events. The online library also holds publications and articles.
http://www.parkinson.org/
Parkinson's Disease Foundation
The Parkinson's Disease Foundation provides information about Parkinson's disease itself as well as related organizations, research centers and events. You can also read the latest Parkinson's news or join the online email list.
http://www.pdf.org/
Parkinson's Action Network
The Parkinson's Action Network was founded in 1991 with a mission to provide a voice for the Parkinson's community. Since that time, the Network's central objective continues to be to promote a level of research support sufficient to produce effective treatments and a cure.
http://www.parkinsonsaction.org/
The Michael J. Fox Foundation for Parkinson's Research
The Michael J. Fox Foundation for Parkinson's Research is dedicated to ensuring the development of a cure for Parkinson's disease within this decade through an aggressively funded research agenda.
http://www.michaeljfox.org/
Parkinson's Disease and Movement Disorders Center of Maryland
Created to provide expert, compassionate care for persons with movement disorders using a multidisciplinary approach and the latest treatments.
http://www.pdmdcenter.com/
